About Me

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Welcome to my blog.  My name is Paul and I am an adult with autism. My hope for this blog is to spread information about autism, communication differences and motor planning disorders. This blog will allow me to share my story and perspective.  

I hope my experience will open others’ minds to a new way of seeing and thinking about people with autism.

If you come away with nothing else from this blog, i hope you understand the following:

  • Every autistic person is different.

  • There are many ways to communicate from oral communication, sign language, typing and everything in between.  

  • Even rote phrases that you might think are scripts can have meaning to a kid with communication disorders.  You just have to figure it out.

  • You should always assume intelligence and never speak in a demeaning way to people with autism.

  • Some of what you might think are “odd” behaviors are actually ways that some individuals deal with sensory needs. 

8 thoughts on “About Me

  1. GARRETT WILL BE 5 ON FEBRUARY 15, WE WENT TO SCHOOL TODAY NOT BECAUSE WE WERE ATTENDING CLASS, BUT BECAUSE WE WERE MEETING WITH A PSYCHOLOGIST, SPEECH THERAPIST, AND A SPECIAL ED TEACHER. GARRETT ISN’T IN SCHOOL YET, GARRETT DOESN’T TALK MUCH, HE IS STILL IN TRAINING PANTS, I TRY THE BEST I CAN. WE HAVE BEEN TO DOCTORS, AN E.N.T. , WE HAVE REFERRALS TO SPEECH PATHOLOGISTS, WAITING ON WAITING LISTS, HAVE BEEN SCREENED, SEEN THERAPIST, BUT OUT OF THESE WORDS DIDN’T COME. I EXAGGERATE, HE SAYS “WHAT’S THAT?” 100 TIMES A DAY, AND “MOM” 10 X THAT. HE MAY SURPRISE EVERYONE IN THE ROOM WHEN HE RANDOMLY BLURTS OUT A FEW SENTENCES LIKE ANY OTHER 4 YEAR OLD. BUT FOR WHATEVER REASON THIS HE IS NOT.

    I KNEW TODAY WE WOULD TALK ABOUT SCREENING AND EVALUATIONS. I AM NOT COMPLETELY OBLIVIOUS, I REALIZE GARRETT DOESN’T BELONG IN THE ATYPICAL CLASS. I DID NOT PREPARE MYSELF FOR WHAT THE ALTERNATIVEWOULD BE. PLEASE TELL ME YOUR FEELINGS, THOUGHTS, AND INSIGHT ON THE ALTERNATIVE. THEYWILL PLACE GARRETT IN THE CO-OP ROOM. IN THE CO-OP ROMM THERE IS EXTRA ADLT SUPERVISION. IT IS MADE UP OF ALL THE SPECIAL ED STUDENTS, ALL THE STUDENT FROM GRADES 1-12. YOUNGEST IS 9? AND OLDEST 16. ALL THESE STUDENTS ARE “NON-VERBAL” AND COVER A RANGE OF A-Z OF NEEDS, INCLUDING FEEDING TUBES. MY LITTLE BOY NEEDS AND YEARNS FOR INTERACTION WITH OTHER CHILDREN. WOULD THIS NOT TRAUMATIZE EVEN YOU NOW, MUCH LESS A 5 YEAR OLD WHO AS HAD LITTLE EXPOSURE TO OTHER CHILDREN AND ALL IN A WIDE AGE SPAN? AM I BEING STEREOTYPICAL? PARANOID?OVER PROTECTIVE?

    YOUR PERSPECTIVE WOULD BE APPRECIATED..

    SINCERELY,
    GIGI

    • Garrett needs to be around professionals who assume intelligence no matter what. Garret needs to have things explained to him, not just done to him without any explanation. Even at such a young age this will help with his anxiety and let him know that people know he has something to say but can’t because of the way his body works. Get a good OT who does SI and will work on engagement with him. I would not want to be in a room like that, but if there are no other options, explain it to him. Make sure he understands that you know he is an intelligent being. Also look into rapid prompting. It opened up my world for me.

  2. hi, Paul

    My name is Jane and I’m a global marketer/ product developer. A friend and I participated in the NYC ConnectAbility hackathon in 4/18 weekend. It was an exhausted but exuberated experience. We enjoyed and were inspired by your/ other examplers’ presentaitons.

    We like to contribute and challenge ourselves a bit so we decided to join the global competition (http://connectability.challengepost.com/) with a brand new idea. We’re talking to people this week and would like to discuss the idea and hear your thoughts. Can you please e-mail me?

    Thank you & Best regards, Jane

  3. Hi Paul,

    My name is Marc and I am a tech journalist at L’actualité, a French-Canadian public affairs magazine.

    I just read your op-ed on wired.com, and I would like to ask you a few questions. Can you email me so we can arrange an interview?

    Best Regards,

    Marc

    • Hi Marc,

      Thanks for your interest! The easiest way to set up an interview would be to email Barbara Morgan at bmorgan@skdknick.com and she will provide background info on the Connectability Challenge and facilitate the interview process. Looking forward to speaking with you!

      Thanks again,

      Paul

  4. Hi, Paul,
    Great blog! I really enjoy reading about your perspective and experiences…I was especially touched by your beautiful and insightful post about what people notice and focus upon in life (the paperclip post). I’m looking forward to sharing your blog with my son.
    Cheers!
    Kelsey Gonzalez

  5. Hello Paul,

    My name is Lauren and I’m a prospective genetic counseling student. I am curious to hear your thoughts on the practice of genetic counseling in relation to the disability community.

    I’m extremely interested in improving the relationships between the disability and medical community.

    Best,
    Lauren

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